“Somewhere Over The Rainbow” - Israel
Kamakawiwo'ole
I was diagnosed at age 12, was told I'd 'grow out of it' and to date, have had 6 surgeries (with possible 7th looming). I've never given up on myself, on research for my condition or on the potential outcomes that have come from each new problem which might have cropped up along my journey. My hope is that with true stories, real feelings (both happy and sad) as well as an injection of humor here and there that I can help someone else going thru similar circumstances.
About Me
- JerseyOT
- In 2012, I had 2 operations back-to-back. It was an excruciating and grueling recovery. I was doing well until about 8wks post-op when I broke my back (T12 transverse process) in therapy. I spent another 10 days in the hospital and a month in an acute rehab facility. I was in a clamshell brace for over 8 months with no improvement. I underwent surgery #5 on 11/20/12 and required a 6th surgery on 11/24 due to serious complications. After spending another month in the hospital, I finally came home on 12/21/12. Recovery has been difficult and challenges seem to pop up whenever they get the chance. My most pronounced challenge are these terrible positional headaches that started in early 2013. I had a prior CSF leak in Nov 2012 however both the neurosurgeon and ortho surgeon believe it's occurring all over again as my brain MRI shows "clear & obvious indications of a CSF leak." I had at least 1/2 dozen consults with various specialists to determine what would be the best course of treatment and since bed rest hasn't worked, surgery is the only option left. Surgery #7 is full of unknowns regarding length of surgery, stay and recovery.
Monday, January 23, 2012
Tomorrow is the day....
1 more day…I have to be at Cooper Hospital at 6:30am! Bright and early! But by this time tomorrow, I’ll be out of
surgery and recuperating quietly, comfortably and uneventfully…and at that
point, it’ll be “one down, one to go!” I
am scared, anxious and eager to get this over and done with so I can move on
and get back to enjoying the little things in life again. I am confident in the skills, knowledge and
expertise of my surgeon as well as the team of doctors and nurses who will be
helping me along and taking care of me through this part of my journey. We will get through this. It won’t be easy – but we will get through
it. Fortunately, I am blessed to have an
incredibly supportive and loving network of family and friends (and even some
strangers!) who have been praying for me and my family for months now. Believe me when I tell you that we
feel your prayers and support and we are so thankful for it. I will post updates on how things are going
along the way. Thank you once again for
your continued love, support and prayers – they mean so much to me and my
family.
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Praying for you and your family Michelle....we missed you at MOPS today but you were with us in prayer and spirit!
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