Well my fiends and family....ALOT and I do mean A-L-O-T has happened since the last post I made way back in early March. I don't even know how it all happened but I'll do my best to describe what I know. I was doing well, fairly well physically and surgically aside from several weeks of stomach issues (see my "Tummy Troubles" entry before this post). So here's whats been going on.
I was about 2 weeks away from discharge from my home PT and was making slow,steady progress. On the weekend of 3/24, I started experiencing pain in my lower back but it wasn't that "good pain" or "healing pain" that I have spoken of previously. Something was off, it hurt and it was getting worse with each passing day. By Sunday, I was barely able to stand up and it felt like I was being sabbed with every movement I made. By Monday, it was decided that I was just going to get the X-ray and show up at my surgeons office with my Dad, which is exactly what we did. The surgeon saw that I was in excruciating pain, and said "your X-rays look great. I don't see anything out of place. It's probably just a bad muscle spasm." Little consolation as I lay there sobbing in pain. My Dad suggested a cortisone injection and the doctor agreed as if saying "well, if you insist" - he said to call him Friday to let him know how I was doing.
Well, I made it til Wednesday before calling him back and telling him it was so bad I literally could not walk and that the pain was absolutely unbearable. Actually now that i think about it, Chad called because is was crying from the pain i couldn't talk. He said come to the ER, I'll admit you, we'll get your pain under control and get a CT scan just to make sure it wasn't more than a muscle spasm. Well, it was definitely more than a muscle spasm. He walked into my room at 6:50am the following morning after being admitted and said: "we'll, you have a broken back at the T12 level (1 level above where my fusion starts). He went on to say I have two options: "A clam shell back brace for 3 months or another extensive surgery to extend the fusion." and that was about it - then he was off to Bulgaria
to do mission work/surgery. Great...i brake my back and my surgeon goes out of the country for a
week! C'est la vie. So, I spent a week at Cooper on IV pain and muscle relaxant meds and on April 4th, was transferred to Magee Rehab Hospital.
Here at Magee, my PT (Alex) is one of the brightest most experienced therapists I've ever come across - and aside from that he's a nice guy and makes me laugh even when what were doing hurts. My OT (Liz) always greets me with a smile on her face and a positive attitude. She takes OT to another level by incorporating all aspects of me, my daily life, my occupation (an OT!) and my rehab, not just my back. The care I am getting here is top notch incredible. The Nurses, the CNA's, the maintenance staff, everyone - they all greet you with a smile. I have a minimum of 3 hours of therapy a day: PT, OT, Recreation therapy, art therapy and even horticultural group twice a week. I was told I'd be here about 4 weeks. I've completed two weeks thus far and have 2 more to go. It's hard work - its extremely painful to have a broken back (and this brace is not helping) on top of what was 8-9 weeks post-op healing from from the other 2 surgeries. I am getting the physical, mental,
emotional and psychological counseling that I need and I am so incredibly grateful. I am currently in
a wheelchair but that is NOT permenent (I'm not steady enough to walk so if I want to get around in my room I scoot around in my w/c - i can walk about 20-30' (which when i first got, here I couldn't even stand and walk 3-4') with assistance and a rolling walker and my standing tolerance has gotten alot better about 3-5' which is a big improvement. I NEED to be here - IT has taken me 2 weeks to really believe that - but I really do need to be here so that I come home, I'll be home for good. Thank goodness for FaceTime and Skype. I miss my babies and husband and I am so blessed for my parents and all they've given up and put on hold back home in Savannah to be here with us taking care of the kids and everything's you can think, imagine or dream of.
So with that I will update when possible. Email or call whatever you want. I will return all calls and emails although i have to admit I'm pooped by 9am and am often asleep by then! Haha! Thanks for all your prayers And support. I don't what my family and I would do without everyone's love And support.
Again, thank you!!
I was diagnosed at age 12, was told I'd 'grow out of it' and to date, have had 6 surgeries (with possible 7th looming). I've never given up on myself, on research for my condition or on the potential outcomes that have come from each new problem which might have cropped up along my journey. My hope is that with true stories, real feelings (both happy and sad) as well as an injection of humor here and there that I can help someone else going thru similar circumstances.
About Me
- JerseyOT
- In 2012, I had 2 operations back-to-back. It was an excruciating and grueling recovery. I was doing well until about 8wks post-op when I broke my back (T12 transverse process) in therapy. I spent another 10 days in the hospital and a month in an acute rehab facility. I was in a clamshell brace for over 8 months with no improvement. I underwent surgery #5 on 11/20/12 and required a 6th surgery on 11/24 due to serious complications. After spending another month in the hospital, I finally came home on 12/21/12. Recovery has been difficult and challenges seem to pop up whenever they get the chance. My most pronounced challenge are these terrible positional headaches that started in early 2013. I had a prior CSF leak in Nov 2012 however both the neurosurgeon and ortho surgeon believe it's occurring all over again as my brain MRI shows "clear & obvious indications of a CSF leak." I had at least 1/2 dozen consults with various specialists to determine what would be the best course of treatment and since bed rest hasn't worked, surgery is the only option left. Surgery #7 is full of unknowns regarding length of surgery, stay and recovery.
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