So here I am 5-1/2 weeks post-op from surgery #2. All in all, i'm feeling ok - some days are definitely better than others but I can see improvements every day. This morning, my Mom and I walked to the corner (about 5 houses down) and back...albeit slowly, but we did it. My biggest problem since coming home has been the constant nausea and stomach upset - 24/7 - finally, at the urging of my visiting nurse and home PT, I went to see my surgeon yesterday because the tummy troubles, low blood pressure and overwhelming fatigue were just really getting the best of me. He said all looked good from a surgical standpoint but that what I have is most likely "stress gastritis" - an inflammation of the stomach lining. It's been really hard to function with feeling so nauseous all the time and as a result, I've lost about 7-lbs over the past 10-12 days and there are days when i can't even lift my head off the pillow or sit on the edge of the bed due to the nausea. I've started on the usual tummy remedies: antacids, Pepto, Tums, gingerale, soda crackers and just bland soft foods to keep everything "quiet" in there. Today is the first day in a long time where I actually felt well enough to walk outside, even if it was only 5 houses down and back! The doctor said it's all normal (how i'm feeling) and then he reminded me and my Mom how much work he had to do on me and what an ordeal my body went thru and now that the surgeries are over, my body is reacting to the stress of it all. 5 weeks later?? Who knew?!?! I was expecting to be doing alot more than I'm currently and with alot more energy - I was hoping I'd be up and around a lot more but I'm not and so the surgeon reminded me that this is a long recovery (6-12mo) and that I need to be patient with myself and let my body heal and rest. Easier said than done. But i'm working on it.
The kids are doing fairly well through all of this. No sugar-coating anything, it's been hard on all of us for a variety of reasons and in a variety of ways. We've kept their schedules the same as there is some comfort in knowing there's still a routine even in the midst of stress. Nana and PopPop basically closed up shop in Savannah and moved in with us to help out: everything from errands, food shopping, taxi for me and the kids, meal maker, etc. My husband has taken time off intermittently thoughout all of this as well - days to visit me in the hospital and at rehab, days to take me to doctor appointments and other times, days to just stay home and help out with the kids. What a blessing they've been.
All in all things are going well - - my family and I are just blessed and grateful for the ovewhelming kindness and generosity of so many family, friends and even some strangers through all of this. If for some reason i have neglected to thank you all yet, please let me do so now...THANK YOU - ALL OF YOU - for your constant prayers, words of encouragement, visits, cards, emails, phone calls, meals - thank you for all of it from the bottom of my heart.
I was diagnosed at age 12, was told I'd 'grow out of it' and to date, have had 6 surgeries (with possible 7th looming). I've never given up on myself, on research for my condition or on the potential outcomes that have come from each new problem which might have cropped up along my journey. My hope is that with true stories, real feelings (both happy and sad) as well as an injection of humor here and there that I can help someone else going thru similar circumstances.
About Me
- JerseyOT
- In 2012, I had 2 operations back-to-back. It was an excruciating and grueling recovery. I was doing well until about 8wks post-op when I broke my back (T12 transverse process) in therapy. I spent another 10 days in the hospital and a month in an acute rehab facility. I was in a clamshell brace for over 8 months with no improvement. I underwent surgery #5 on 11/20/12 and required a 6th surgery on 11/24 due to serious complications. After spending another month in the hospital, I finally came home on 12/21/12. Recovery has been difficult and challenges seem to pop up whenever they get the chance. My most pronounced challenge are these terrible positional headaches that started in early 2013. I had a prior CSF leak in Nov 2012 however both the neurosurgeon and ortho surgeon believe it's occurring all over again as my brain MRI shows "clear & obvious indications of a CSF leak." I had at least 1/2 dozen consults with various specialists to determine what would be the best course of treatment and since bed rest hasn't worked, surgery is the only option left. Surgery #7 is full of unknowns regarding length of surgery, stay and recovery.
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