I was diagnosed at age 12, was told I'd 'grow out of it' and to date, have had 6 surgeries (with possible 7th looming). I've never given up on myself, on research for my condition or on the potential outcomes that have come from each new problem which might have cropped up along my journey. My hope is that with true stories, real feelings (both happy and sad) as well as an injection of humor here and there that I can help someone else going thru similar circumstances.
About Me
- JerseyOT
- In 2012, I had 2 operations back-to-back. It was an excruciating and grueling recovery. I was doing well until about 8wks post-op when I broke my back (T12 transverse process) in therapy. I spent another 10 days in the hospital and a month in an acute rehab facility. I was in a clamshell brace for over 8 months with no improvement. I underwent surgery #5 on 11/20/12 and required a 6th surgery on 11/24 due to serious complications. After spending another month in the hospital, I finally came home on 12/21/12. Recovery has been difficult and challenges seem to pop up whenever they get the chance. My most pronounced challenge are these terrible positional headaches that started in early 2013. I had a prior CSF leak in Nov 2012 however both the neurosurgeon and ortho surgeon believe it's occurring all over again as my brain MRI shows "clear & obvious indications of a CSF leak." I had at least 1/2 dozen consults with various specialists to determine what would be the best course of treatment and since bed rest hasn't worked, surgery is the only option left. Surgery #7 is full of unknowns regarding length of surgery, stay and recovery.
Showing posts with label 3 Days and counting.... Show all posts
Showing posts with label 3 Days and counting.... Show all posts
Saturday, January 21, 2012
Life is "Brutiful"....
I heard something on the radio (89.5) yesterday – it was a
story about a woman who said that life was “brutiful” - - - brutal and beautiful - - - hence the term, “brutiful.” She goes on to say that life is both brutal
and beautiful and that we need to experience both and that we get through the
brutal and experience the beautiful every day, week, month and year. I loved it.
Brutiful – it’s so true!
It’s snowed, finally!
We woke up to the beautiful
scenery of a few inches of snow this morning and by the reactions of my two
children, you would have thought Santa himself had just made a surprise visit
overnight! I wish we could all
see life through the eyes of a child (and that includes snow). Their eyes filled with wonderment, delight
and just sheer joy at the sight of seeing how the snow blanketed the yard,
trees and cars. It was just enough snow
to get them “suited up” in their big bulky snowsuits (much like that worn by
the younger brother of Ralphie in “A Christmas Story!”) They went outside with Daddy to help him
clear off the cars, shovel the driveway and make snow angels…ok, well they didn’t
help my husband much but they did make lots and lots of snow angels. At one point I was standing on the porch
watching when my son yelled, “Hey look Mommy!
Look at my snow angels!” And in
that instant, as I watched Matthew and Katie playing together in snow, I thought
to myself, “Yes, would you just LOOK at my two beautiful little snow angels. Thank you God for my snow angels!”
So, today marks 3 days to go…three, as
in 1-2-3. It’s definitely hitting me
now. That is the brutal reality of it sitting right there in front of me and I can’t
ignore it anymore. It’s like when kids
play hide-n-seek and yell “Ready or not, here I come!” That’s sorta how I feel. The orthotist dropped off my back brace this
afternoon and I’ll need to bring it with me to the hospital on Tuesday. It’s looovelyyyy (haha). I started packing for “the trip” – not to
Bermuda or Barbados …oh
I wish…this trip isn’t one many would ever want to sign up for. From what I hear, the view stinks, the food
is awful and there’s no happy hour! So how
much underwear and socks do I really
need when I’ll be in the hospital for 2+ weeks?
Do I bring a hairdryer? My phone
and iPad for sure – Santa got us an iPad so that Mommy could see the kids on
FaceTime while in the hospital. I love
Santa for thinking of that! And the
phone has all my music, which I love so much and can’t live without!? Definitely need to bring a few framed photos
of me and the kids. That will be the
hardest part – not seeing the kids every day.
I worry how they’ll handle this – but kids are so resilient and with so
many friends and family members offering their support, I know they’ll be
ok. It may take a while, but we’ll get “there.” The other day my son was asking questions
about my back surgeries and on our way home from daycare he said, “So Mommy,
they’re gonna take out your bad bones and put new ones in but they just have to
remember to not touch the sides, like in Operation (the game!)” As I chuckled under my breath but at the same
time wiped a tear away, I said “Yep Matt, something like that!” Another “brutiful” moment…
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