Well, last week was interesting, to say the least. On Friday, I was 911'd to Cooper with excruciating chest pains that didn't let up after about 45' - and at that point, the pain was traveling up into my left shoulder. It was very scary. I called my cousin, who dropped everything and came over to watch my son, and within 4' of the call, a police cruiser and ambulance arrived (with no sirens or lights, at my request, as i didn't want to scare my son or bring attention to the neighbors about what was going on). I was admitted thru the ER and was discharged Sunday night...it was all due to a stone (even though i don't have my gall bladder anymore!) that was blocking my common bile duct, which caused a bit of pancreatitis - the actual diagnosis was something called "post cholecystectomy syndrome.". VERY painful, whatever it was and i'm just glad it's over and that I'm home again. My mom came up and will spend about 2 weeks with me...i'm really "wobbly" on my feet, as alot of people have mentioned to me, and i'm not quite sure why -- I saw a pain management doctor last week and maybe it's the new meds...my legs are still really really weak...but i can't do outpatient PT until the T12 transverse process heals. I'll be going for an xray while my Mom is here and i see the surgeon again in a couple weeks. HOPEFULLY it has healed by now...i sure hope so...
So I need to tell you what an amazing group of people from my church, HOPE Church, who name i still believe was meant for me...anyway, meals have been arranged for the next couple weeks as well as some light housekeeping and shopping if i feel i need it. Rides to/from doctors offices, whatever! They're ready and willing to do it all. Through all the trials and tribulations, I am constantly reminded of God's grace and love - HE is in control of all this, not me - and HE will get me through it...whatever "it" turns out to be. Through it all, I am blessed.
I was diagnosed at age 12, was told I'd 'grow out of it' and to date, have had 6 surgeries (with possible 7th looming). I've never given up on myself, on research for my condition or on the potential outcomes that have come from each new problem which might have cropped up along my journey. My hope is that with true stories, real feelings (both happy and sad) as well as an injection of humor here and there that I can help someone else going thru similar circumstances.
About Me
- JerseyOT
- In 2012, I had 2 operations back-to-back. It was an excruciating and grueling recovery. I was doing well until about 8wks post-op when I broke my back (T12 transverse process) in therapy. I spent another 10 days in the hospital and a month in an acute rehab facility. I was in a clamshell brace for over 8 months with no improvement. I underwent surgery #5 on 11/20/12 and required a 6th surgery on 11/24 due to serious complications. After spending another month in the hospital, I finally came home on 12/21/12. Recovery has been difficult and challenges seem to pop up whenever they get the chance. My most pronounced challenge are these terrible positional headaches that started in early 2013. I had a prior CSF leak in Nov 2012 however both the neurosurgeon and ortho surgeon believe it's occurring all over again as my brain MRI shows "clear & obvious indications of a CSF leak." I had at least 1/2 dozen consults with various specialists to determine what would be the best course of treatment and since bed rest hasn't worked, surgery is the only option left. Surgery #7 is full of unknowns regarding length of surgery, stay and recovery.
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