About Me

My photo
In 2012, I had 2 operations back-to-back. It was an excruciating and grueling recovery. I was doing well until about 8wks post-op when I broke my back (T12 transverse process) in therapy. I spent another 10 days in the hospital and a month in an acute rehab facility. I was in a clamshell brace for over 8 months with no improvement. I underwent surgery #5 on 11/20/12 and required a 6th surgery on 11/24 due to serious complications. After spending another month in the hospital, I finally came home on 12/21/12. Recovery has been difficult and challenges seem to pop up whenever they get the chance. My most pronounced challenge are these terrible positional headaches that started in early 2013. I had a prior CSF leak in Nov 2012 however both the neurosurgeon and ortho surgeon believe it's occurring all over again as my brain MRI shows "clear & obvious indications of a CSF leak." I had at least 1/2 dozen consults with various specialists to determine what would be the best course of treatment and since bed rest hasn't worked, surgery is the only option left. Surgery #7 is full of unknowns regarding length of surgery, stay and recovery.

Monday, February 4, 2013

11 Weeks Post-Op and Doing Great

It has been a looooooong time since I posted - and for that, my apologies!  It has been a whirlwind of a time.  Having had not one but two surgeries (11/15/2012 and then an infection made for a second surgery 4 hours in length on 11/20/2012).  I spent a month in the hospital, several days in the the critical care unit, then another few days in ICU and then finally into a regular room.  A 4-day stay at Magee Rehab was short-lived because I developed something called "Drug Fever" in which I was literally growing sicker and sicker with each passing day because I was allergic to the medicine I was on for the post-op infection, but it took them 2 weeks to figure that out.  I had fevers of well over 104 degrees, drenching sweats followed by bone-chilling shakes and chills - that went on 2-3 times a day and lasted 2 weeks before the specialists at the hospital even had an clue what was wrong.  They ran so many blood cultures that I became dangerously anemic, losing 1/2 my blood volume from both post-op bleeding and post-op infection and blood tests.  I developed bilateral pleural effusions, and needed to have the fluid drained in my lungs and surrounding space with needles. That sucked...alot...I don't ever remember being more afraid of dying in my entire life, ever actually. I remember quite vividly nearing my 2nd post-op week in the hospital (almost 4 weeks in the hospital at that point) and pleading my Mom, "You have to get me out of here...tomorrow...if they don't figure out what's wrong with me I'm going to die...and I can't...die..."  It was by far the scariest time of my entire life, aside from when my daughter required life-saving lung surgery to remove a tumor the size of an apple from her tiny chest at just 4 weeks of age.  THAT was the scariest time...this was the 2nd scariest...it was an ordeal, for me, my husband, my two very young children and my parents - who gave up 1/2 of their year to move in with us and help us with everything, big and little and in between.  It was a trying time, a scary very uncertain time, but all the while, we never lost hope...we never expected less than a miracle...and by the grace of God, we got one...we got alot of them....

Below is a poem that took several weeks to write...I decided to share it on here because I believe in it...I hope you like it....

MAKER OF THE UNIVERSE 

Maker of the universe, of fire wind and rain
How was I to go through that and ever be the same?

Maker of the universe, Your strength so great and true
How was I to find the strength if I did not lean on you?

Maker of the universe, Your love so strong and sound
You wrapped me in your tenderness, I prayed I would be found.

Maker of the universe, You carried me through my fears
In your arms of love and safety, you wiped away my tears.

Maker of the universe, You know me like no other
How am I to be a better person, wife and mother?

Maker of the universe, forgiveness is your doing
Give me grace when I have sinned and lead me where I’m going.

Maker of the universe, all praise and glory is yours
You alone are the reason why I’m standing on these shores.

Maker of the universe, You’re full of awesome power
Give me strength to carry on until my final hour.

Maker of the universe, I can finally see the light
My days are turning brighter as I’ve battled through the fight.

I made it through the toughest times, with You I have not faltered
My path, although a crooked one, I never would have altered.

---------------------------------

You see…struggles are perspective-based, it depends on how you view them
Don’t question why or second-guess, to do so is just futile
Instead…accept the things you cannot change and use them for good purpose
To live your life, as your Maker would have you live it, and praise Him for all things.
God is Great…Expect Miracles